The Organization for Rare Diseases India (ORDI), a national patient advocacy organization committed to addressing challenges faced by people with rare diseases in India, hosted the 11th edition of its flagship...
New Delhi: Finance Minister Nirmala Sitharaman Sunday announced a full exemption from basic customs duty on 17 life-saving drugs including cancer drugs. She also included seven additional rare diseases that will now qualify...
Finance Minister Nirmala Sitharaman on Sunday, 1 February, announced duty exemptions on personal imports of drugs, medicines, and Food for Special Medical Purposes for seven additional rare diseases in the...
In a nation of over 1.4 billion people, the word “rare” can be very misleading. While each specific disease might affect only a small number of people, the total number...
Eight-year-old Krish Dev is recovering from a surgery performed to support his neck, as his body stopped growing even as his head continued to do so. Witty and sharp as...
Dr Sudheendra Rao N R from the Organization for Rare Diseases India reveals that approximately 70 million are affected by rare diseases and a majority of them are children. Rare...
As Russian President Vladimir Putin concludes his visit to India, the Organisation for Rare Diseases India (Ordi), a national umbrella organisation representing patients with rare diseases, has asked the Centre...
Samagra Shiksha Abhiyan offers home-based learning for students with severe disabilities, yet problems in access, awareness, and support remain. Thirteen-year-old Rohan (name changed), a little shy and very happy, envelops his...
