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Delhi HC directs Center to Notify health policy for rare diseases by March 31

Click below link: https://medicaldialogues.in/state-news/delhi/delhi-hc-directs-center-to-notify-health-policy-for-rare-diseases-by-march-31-75856...

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Delhi HC gives nod for NCRD, orders to finalise National Health Policy for Rare Diseases before March 31

Click Below Link: https://www.aninews.in/news/national/general-news/delhi-hc-gives-nod-for-ncrd-orders-to-finalise-national-health-policy-for-rare-diseases-before-march-3120210323190719/...

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[BREAKING] Delhi High Court sets up Rare Diseases Committee and Fund; directs notification of National Policy for Rare Diseases

Click below link: barandbench.com/news/litigation/delhi-high-court-sets-up-rare-diseases-committee-fund-directs-notification-national-policy The Court has directed the Central government to finalized and notify the National Health Policy for Rare Diseases on or before March 31, 2021. [BREAKING] Delhi...

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Delhi High Court Directs Setting Up Of Rare Diseases Fund, Committee & Notification Of Policy

Click below link: https://www.livelaw.in/news-updates/delhi-high-court-rare-diseases-committee-all-india-institute-of-medical-sciences-aiims-171579  ...

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Notify health policy for rare diseases by March 31: Delhi HC to Centre

Click below link: Notify health policy for rare diseases by March 31: Delhi HC to Centre Topics Delhi High Court Press Trust of India  |  New Delhi Last Updated at March 23,...

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Notify health policy for rare diseases by March 31, HC asks Centre; directs setting up of R&D body

Click below link: https://www.newindianexpress.com/nation/2021/mar/23/notify-health-policy-for-rare-diseases-by-march-31-hc-asks-centre-directs-setting-up-of-rd-body-2280418.html NEW DELHI: The Delhi High Court Tuesday asked the Centre to finalise and notify the National Health Policy for Rare Diseases by March 31, and directed...

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New Advancements in Genetic Analysis For Rare Disease Delivering Accuracy & Affordability

Click for the website: https://www.wfmz.com/news/pr_newswire/pr_newswire_health/new-advancements-in-genetic-analysis-for-rare-disease-delivering-accuracy-affordability/article_fc1fafad-8354-5176-8aa1-b7b64f43111e.html ORLANDO, Fla., March 19, 2021 /PRNewswire-PRWeb/ — What is genetic analysis? Genetic analysis is the process of screening a person for the possibility of a genetic syndrome or...

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Know what diseases fall under Rare Diseases category

Click for the article: https://www.indiatvnews.com/health/know-what-diseases-fall-under-rare-diseases-category-691930 Know what diseases fall under Rare Diseases category As the name suggests Rare Diseases are those that are less in occurrence than compared to other...

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What price a child’s life? India’s quest to make rare disease drugs affordable

Parents whose only hope was For three years, Vidya tried to find the cause of her son’s recurrent fevers and low cognitive development. When she found out, she was devastated....

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From delayed diagnosis to lack of funds: India’s shaky rare disease road map

India does not have a healthcare policy for Rare Diseases in place, and whatever little benefits exist are only applicable for BPL Families, writes, Prasanna Shirol, Founder Director, ORDI Rare...

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