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Delhi High Court Directs Setting Up Of Rare Diseases Fund, Committee & Notification Of Policy

Click below link: https://www.livelaw.in/news-updates/delhi-high-court-rare-diseases-committee-all-india-institute-of-medical-sciences-aiims-171579  ...

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Notify health policy for rare diseases by March 31: Delhi HC to Centre

Click below link: Notify health policy for rare diseases by March 31: Delhi HC to Centre Topics Delhi High Court Press Trust of India  |  New Delhi Last Updated at March 23,...

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Notify health policy for rare diseases by March 31, HC asks Centre; directs setting up of R&D body

Click below link: https://www.newindianexpress.com/nation/2021/mar/23/notify-health-policy-for-rare-diseases-by-march-31-hc-asks-centre-directs-setting-up-of-rd-body-2280418.html NEW DELHI: The Delhi High Court Tuesday asked the Centre to finalise and notify the National Health Policy for Rare Diseases by March 31, and directed...

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New Advancements in Genetic Analysis For Rare Disease Delivering Accuracy & Affordability

Click for the website: https://www.wfmz.com/news/pr_newswire/pr_newswire_health/new-advancements-in-genetic-analysis-for-rare-disease-delivering-accuracy-affordability/article_fc1fafad-8354-5176-8aa1-b7b64f43111e.html ORLANDO, Fla., March 19, 2021 /PRNewswire-PRWeb/ — What is genetic analysis? Genetic analysis is the process of screening a person for the possibility of a genetic syndrome or...

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Know what diseases fall under Rare Diseases category

Click for the article: https://www.indiatvnews.com/health/know-what-diseases-fall-under-rare-diseases-category-691930 Know what diseases fall under Rare Diseases category As the name suggests Rare Diseases are those that are less in occurrence than compared to other...

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What price a child’s life? India’s quest to make rare disease drugs affordable

Parents whose only hope was For three years, Vidya tried to find the cause of her son’s recurrent fevers and low cognitive development. When she found out, she was devastated....

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From delayed diagnosis to lack of funds: India’s shaky rare disease road map

India does not have a healthcare policy for Rare Diseases in place, and whatever little benefits exist are only applicable for BPL Families, writes, Prasanna Shirol, Founder Director, ORDI Rare...

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Racefor7: Over 4000 participants virtually unite to raise awareness for rare diseases

Click Below Link: Racefor7: Over 4000 participants virtually unite to raise awareness for rare diseases In the backdrop of 70 million rare disease patients in India, Organization for Rare Diseases...

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Two-year-old Daksha and the uphill task of battling rare diseases

A housewife from Kannur, she had travelled even during the peak Covid days to AIMS Kochi to ensure that her child’s treatment was not affected. KOCHI: Dheeshma Sujesh is willing to...

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A Panel discussion highlights issue rare disease patients face

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