Episode Description In this episode of the Lead, Prasanna Shirol from the Lysosomal Storage Disorder Support Society India talks about helping those affected by rare diseases. Ahmed Shariff: Hi and...
Justice Najmi Waziri, on March 4, took note of the submission by the child’s mother who had contended that there is some hope for treatment of her child in the...
Opinion: India Needs Policy To Ensure Funding, Patient-Friendly Diagnosis To Curb ‘Rare Diseases’ Rare diseases are called so because they occur in only a small portion of a country’s population....
The Department of Pediatrics, AIIMS Bhopal organised several events on the occasion of “Rare Disease Day” on Friday. The purpose of these events was to raise awareness for children suffering...
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click below Link: http://www.pharmabiz.com/NewsDetails.aspx?aid=135938&sid=1 Nandita Vijay, Bengaluru Saturday, March 6, 2021, 08:00 Hrs [IST] The Organisation of Rare Diseases of India (ORDI) has urged the Union government to increase the Rastriya...
Prasanna Shirol whose daughter suffers from a rare disease called Pompe, used his experience and knowledge in establishing rare disease centres in hospitals across India. Click below link:...
Prasanna Shirol used his experience accompanying his daughter for lengthy medical treatments to help establish rare disease centres in hospitals across India Like many rare disease advocates, he wants a...
ORDI – Excecutive Director – Mr Prasanna Shirol was a panalist in Asia Pacific Patient Innovation Summit 2021. Topic of the India Hub : “Establishment and governance of patient groups” ...
