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Rare disease hero: Indian dad whose daughter suffers from Pompe has done wonders for similar kids across the country

Prasanna Shirol used his experience accompanying his daughter for lengthy medical treatments to help establish rare disease centres in hospitals across India Like many rare disease advocates, he wants a...

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ORDI as a Panalist in APPI 2021 – Asia Pacific Patient Innovation Summit-2021

ORDI – Excecutive Director – Mr Prasanna Shirol  was a panalist in Asia Pacific Patient Innovation Summit 2021. Topic of the India Hub : “Establishment and governance of patient groups” ...

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Article published about Rare Diseases in samyukta karnataka news paper

Published on...

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4,000 run for rare disease awareness in 200 cities

The event was held virtually, uniting over 4,000 participants from 200 cities across the country, to raise their voices for the rare disease community. BENGALURU : To raise awareness on...

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LSDS News

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Rare Disease News

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Rare Disease Day in India: 7 Reasons to Rejoice

Click Below Link: https://www.linkedin.com/pulse/rare-disease-day-india-7-reasons-rejoice-arjun-gupta/?trackingId= The first Rare Disease day was observed by EURODIS and many other nations on 29th February 2008 to raise awareness for rare diseases. The date was very thoughtfully...

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Rare Disease Day Online CME Govt medical Collge – Kozhikode

Our executive Director – Mr Prasanna Shirol participated as a panalist in “Rare Disease Day-2021”  Online “CME”  28th feb 2021. Organised by Govt Medical Collge – Kozhikode ( department of...

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World Rare Disease Day artcle in Udayvani by Dr Girish Katta

ORDI Featured in an Article written by Dr Girish Katta  Arogyavani Section of Udayvani Kannada News Paper  in account of  World Rare Disease...

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