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Rare Disease Day: Health advocacy groups press for govt policy, say India’s numbers unknown

Click Below Link: https://www.deccanherald.com/science-and-environment/rare-disease-day-health-advocacy-groups-press-for-govt-policy-say-india-s-numbers-unknown-955970.html...

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”Wu Assassins” standalone movie ‘Fistful of Vengeance’ in development at Netflix

Click Below Link https://www.outlookindia.com/newsscroll/wu-assassins-standalone-movie-fistful-of-vengeance-in-development-at-netflix/2037369 Los Angeles, Feb 27 (PTI) Streaming platform Netflix has ordered a standalone movie based on supernatural action series “Wu Assassins”, with Roel Reine attached to direct....

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Race for 7 awarenss run at Davangere

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What do you do when your’s child life is dependent on Rs. 16 Crore drug

Click below link published in times of...

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Rare diseases call for stepped-up R&D

Click Here: https://economictimes.indiatimes.com/blogs/et-editorials/rare-diseases-call-for-stepped-up-rd/ The last day of February is observed as the day of rare diseases, a group of some 7,000 afflictions that mar the lives of some 300 million...

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Raising awareness and funding for Pompe disease

Click Below Link: https://www.asbmb.org/asbmb-today/people/022521/raising-awareness-and-funding-for-pompe-disease ike most new parents, Prasanna and Sharada Shirol were over the moon when their daughter Nidhi was born in 1999. Their firstborn and ultimately only child,...

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ORDI is grateful for the immense #support of the stakeholders from the #RareDisease Community.

It’s because of the combined efforts that we are able to amplify the Rare Voices and move towards the much-required #hope. #rarediseaseday is coming on 28th Feb. Join us in this...

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Raising awareness & de- stigmatizing rare diseases in india

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Race to raise awareness on rare diseases News Today

Click below link: https://www.nyoooz.com/news/chennai/1554708/race-to-raise-awareness-on-rare-diseases-news-today/ Race to raise awareness on rare diseases News Today | Thursday | 25th February, 2021      Chennai: In the backdrop of Rare Disease Day 2021 Organisation...

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Race to raise awareness on rare diseases

Click below link: Race to raise awareness on rare...

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