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Racefor7 raising awareness & destigmatizing rare diseases

Click below link : http://www.uniindia.com/racefor7-raising-awareness-de-stigmatizing-rare-diseases/east/news/2328082.html...

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Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases

The high-level recommendations which were the outcome of the discussions will be shared with the Indian Government To chalk out solutions and to address the key challenges of rare diseases...

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Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases

To chalk out solutions and to address the key challenges of rare diseases in India, Government of Karnataka along with People to People Health Foundation (PPHF), a public health organisation...

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Racefor7 – Raising awareness and de-stigmatizing rare diseases in India

Click below Link Racefor7 – Raising awareness and de-stigmatizing rare diseases in...

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A virtual event in namma Bengaluru to raise awareness and destigmatise rare diseases in India

Click below link: https://timesofindia.indiatimes.com/entertainment/events/bangalore/a-virtual-event-in-namma-bengaluru-to-raise-awareness-and-destigmatise-rare-diseases-in-india/articleshow/81193039.cms A virtual event in namma Bengaluru to raise awareness and destigmatise rare diseases in India In the backdrop of Rare Disease Day 2021, Organisation for Rare Diseases India (ORDI) a...

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Pompe News

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Lab notes: Marriages within castes may have harmed the health of many communities in India

Endogamous marriages over generations has led to genetic isolation leaving many groups vulnerable, a new study finds. The occurrence of genetic diseases in certain subpopulations in India and other countries...

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South Region Virtual Rare Disease Consultation on 18th February 2021 – Joining Link

Hello All, State government of Karnataka is organising a South Region Virtual Rare Disease Consultation in collaboration with PPHF. The objective of the virtual consultation is to address the key unmet...

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Watch NewX A-List Interview of Mr. Prasanna Shirol; the story of ORDI that begins from going Pillar to Post for his daughter’s undiagnosed Rare Condition until he chooses the path to Rare Advocacy.

https://youtu.be/KnZiSIhQGlE    ...

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Treatment for rare diseases- an ethical imperative

February 17, 2021 2:53 PM World Rare Disease Day – 28th Feb: COVID-19 pandemic exposed the world to ethical imperatives of equitable access to health products.     Rare diseases...

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