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Click Here: https://economictimes.indiatimes.com/blogs/et-editorials/rare-diseases-call-for-stepped-up-rd/ The last day of February is observed as the day of rare diseases, a group of some 7,000 afflictions that mar the lives of some 300 million...
Click Below Link: https://www.asbmb.org/asbmb-today/people/022521/raising-awareness-and-funding-for-pompe-disease ike most new parents, Prasanna and Sharada Shirol were over the moon when their daughter Nidhi was born in 1999. Their firstborn and ultimately only child,...
It’s because of the combined efforts that we are able to amplify the Rare Voices and move towards the much-required #hope. #rarediseaseday is coming on 28th Feb. Join us in this...
Click below link: https://www.nyoooz.com/news/chennai/1554708/race-to-raise-awareness-on-rare-diseases-news-today/ Race to raise awareness on rare diseases News Today | Thursday | 25th February, 2021 Chennai: In the backdrop of Rare Disease Day 2021 Organisation...
Click below link : http://www.uniindia.com/racefor7-raising-awareness-de-stigmatizing-rare-diseases/east/news/2328082.html...
The high-level recommendations which were the outcome of the discussions will be shared with the Indian Government To chalk out solutions and to address the key challenges of rare diseases...
To chalk out solutions and to address the key challenges of rare diseases in India, Government of Karnataka along with People to People Health Foundation (PPHF), a public health organisation...
