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Two-Month-Old Baby Battling Rare Disease To Receive World’s Most Expensive Injection

Suffering from genetic spinal muscular atrophy, the baby is undergoing gene theray and will require an injection that costs Rs 16 Crores An eight-week-old baby in Britain will receive an...

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First woman treated with CRISPR for Sickle Cell Disease

First woman treated with CRISPR for Sickle Cell Disease treatment is showing good recovery after 17 months of treatment. Victoria gray, 34, from USA becomes the first woman to show promising results...

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Virtual consultation on rare diseases held by PPHF

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Unhappy with draft of rare diseases 2020 Policy

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Today being Garrod’s Day, let’s be a part of awareness of Alkaptonuria.

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Digeorge Syndrome Day

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Pancreatic Cancer Awareness Day

Today is Global Pancreatic Cancer Awareness Day. There are fewer than 1 million cases reported per year in india alone. This type of cancer is often detected late and has...

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Karnataka Students with Rare Disease to get 2 hours more for exam

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World Prematurity Awareness Day

  While ” Prematurity” at birth is common, it is important to have increased awareness on the possible preventive measures. Genetic factors may play a role in predisposition of certain...

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Every breath counts: India’s fight against pneumonia

Pneumonia is a pox on the house of public health worldwide – especially where children are concerned. In 2017 alone, the disease killed 2.56 million people worldwide. Of these, almost one-third...

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