We want everyone to be aware of Fabry disease! Join us in spreading awareness about our rare disease. Education and awareness are critical to increasing the recognition, diagnosis, understanding and...
Prime Minister Narendra Modi Thursday addressed the nation on the coronavirus pandemic and urged all citizens to support a ‘janata curfew’ on Sunday, March...
The Organisation for Rare Diseases India (ORDI), a not for profit organisation committed to address the challenges of rare disease patients and their families, in association with JSS Academy of...
Kochi: The Central government informed the Kerala High Court that it has sanctioned Kerala Rs 1.5 crore for the treatment of people suffering from rare genetic diseases. The fund has...
India has recently completed a six-month pilot project sequencing the genomes of individuals within the nation. Could genome sequencing present a boon to combating rare diseases? Despite the infrequency the term...
International Women’s Day (March 8) is a global day celebrating the social, economic, cultural and political achievements of...
Shri. Tejasvi Surya, Member of parliament; Dr. K. Sudhakar, Minister of Medical Education of Karnataka; Smt. Shwetha R Prasad, Actress and Mr. John Dodd, Senior Director- IQVIA flags off Racefor7 Facts about Rare...
Event to be held in 20 Indian cities Image credit- shuttershock.com The Organization for Rare Diseases India (ORDI), a not for profit organization committed to addressing the challenges of rare...
