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Gene therapy: Human trials to begin in Karnataka for treatment of genetic disorders

Gene therapy work was started 10 years ago under the guidance of founder and former chairman Dr K Bhujang Shetty. BENGALURU: Gene therapy human trials will be initiated in India for...

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PANEL DISCUSSION

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Patient Summit Together for Better Health

Boehringer Ingelheim   Our team from the India, Middle East, Turkey, and Africa region recently organized a rare disease summit, bringing together healthcare professionals, patient organization representatives, and policy makers....

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Recommendations of 50th meeting of GST Council

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ORDI Newsletter June 2023

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The gift of early detection: All you need to know about newborn screening

June 28 is International Newborn Screening Day. The purpose of newborn screening is to identify conditions which can be treated, especially if caught early, so that affected children can live...

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KEM Hospital’s Rare Diseases Centre crippled by lack of infrastructure

KEM Hospital, one of the 11 Centres of Excellence (CoE) for Rare Diseases in India, is facing challenges in fulfilling its mandate due to a lack of designated space and...

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Navigating life with Hereditary Angioedema: A patient’s perspective

Hereditary Angioedema (HAE) is a rare genetic condition that can significantly impact a patient’s quality of life. The journey of living with HAE is often marked by uncertainty, frustration, and...

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ORDI Newsletter May 2023

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Sanofi’s drugs to treat Pompe disease and Niemann-Pick disease to be available in India soon

By Monika Yadav Express News Service Sanofi Specialty Care, which has a portfolio of drugs for rare diseases, has received a recommendation from the Subject Expert Committee of the Drugs Controller...

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