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Venkaiah Naidu urge global co-operation to detect new viruses

The Vice-President, who visited the Hyderabad-based CCMB, referred to the novel-strain of Coronavirus in China and pointed out that the disease was spreading across countries and is threatening to become...

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Treatment of rare diseases: Govt demands more fund

Kochi: Seeking more fund to assure treatment to rare diseases, Kerala Social Security Mission submitted an affidavit before the High Court. The affidavit noted that around Rs 50 crore is...

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International Day of Education – 24th January

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Rare Diseases: Awaiting renewed focus

India needs to make significant investments in R&D, policy reforms, and measures to enable affordability and accessibility of medicines and healthcare to manage the burden posed by rare diseases By Usha...

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Unhealthy policies

Instead of banking on uncertain sources for funds, government must increase allocation for healthcare.   Women at a rural pregnancy clinic in Adapur, Bihar.Shutterstock Ablinkered vision can be fatal. Nowhere...

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Centre’s rare disease policy Rs.15-lakh aid a mockery , say patients

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Govt’s Reluctance to bear cost irks rare disease patient’s kin

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Happy Lohri on January 14

Festival of Lohri is succeeded by Makar Sankranthi – a popular festival in central India. The auspicious day of Makar Sankranti (January 14) is celebrated as Bhugali Bihu in Assam,...

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Experts call for action to make National Rare Diseases Policy a reality

With the significant burden imposed by the life-threatening (mostly progressing) rare diseases, they present a fundamental threat to the health systems. This requires a streamlined approach to ensure a timely...

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Prasanna Shirol- Co founder and Director represented ORDI in Roundtable Discussion on Rare Diseases Policy

Prasanna Shirol- Co founder and Director represented ORDI in Roundtable Discussion on Rare Diseases Policy -Deliberating the way forward on 27th July 2019 at India Habitat Centre, New Delhi organized...

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