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Children with rare disorder await govt.’s nod to start treatment

Despite court orders, Tamil Nadu is yet to roll out life-saving ERT Nine-year-old Praveen (name changed), suffering from a rare disorder, is awaiting the State government’s nod to avail of...

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Govt scraps local clinical trials for new medicines

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Here’s what inspired the story of Mard Ko Dard Nahi Hota

Vasan Bala’s upcoming directorial Mard Ko Dard Nahi Hota took the inspiration from a kid at a dentist’s clinic. While the name of the film takes us back to 1985’s...

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Teen with rare disease to live

City doctors rescue 13-year-old Mauritian from rare genetic disorder City doctors gave Ciara, a 13-year-old-girl from Mauritius, suffering from a rare Complement Deficiency genetic disease, a new lease of life. Suffering...

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Lack of policy hampers rare diseases treatment

Chennai: Having 95 patients registered with rare disorders at the Institute of Child Health and Hospital for Children (ICH & HC), patients are awaiting policy-level changes to avail of treatment...

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‘Race for 7’: A multi-city run to create awareness for rare diseases

It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible. While most of us don’t know much about rare diseases,...

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‘Race for 7’: A multi-city run to create awareness for rare diseases

New Delhi [India], Mar 14 (ANI): It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible. While most of us...

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ವೀಲೋಗ್ರಾಫಿ: ವಿಜಯ್‌ಗೆ ‘ರುಕ್ನಾ ನಹಿ’ ಪ್ರಶಸ್ತಿ

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They transform the lives of the marginalised

Changemaker – Social Transformation They make a difference where it truly matters — transforming the lives of the marginalised and the downtrodden. Bringing about change — both behavioural and attitudinal...

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Racefor7 held to create awareness on rare diseases

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