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1st Feb 2020, ORDI appeals for opinions on Rare Disease Policy from voices across the country

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World Cancer Day -4th February

World Cancer Day is the one singular initiative under which the entire world can unite together in the fight against the global cancer...

Venkaiah Naidu urge global co-operation to detect new viruses

The Vice-President, who visited the Hyderabad-based CCMB, referred to the novel-strain of Coronavirus in China and pointed out that the disease was spreading across countries and is threatening to become...

Treatment of rare diseases: Govt demands more fund

Kochi: Seeking more fund to assure treatment to rare diseases, Kerala Social Security Mission submitted an affidavit before the High Court. The affidavit noted that around Rs 50 crore is...

International Day of Education – 24th January

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Rare Diseases: Awaiting renewed focus

India needs to make significant investments in R&D, policy reforms, and measures to enable affordability and accessibility of medicines and healthcare to manage the burden posed by rare diseases By Usha...

Unhealthy policies

Instead of banking on uncertain sources for funds, government must increase allocation for healthcare. Women at a rural pregnancy clinic in Adapur, Bihar.Shutterstock Ablinkered vision can be fatal. Nowhere...

Centre’s rare disease policy Rs.15-lakh aid a mockery , say patients

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Govt’s Reluctance to bear cost irks rare disease patient’s kin

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Happy Lohri on January 14

Festival of Lohri is succeeded by Makar Sankranthi – a popular festival in central India. The auspicious day of Makar Sankranti (January 14) is celebrated as Bhugali Bihu in Assam,...