Rare diseases are those that affect lesser number of people in the general population as compared to other diseases and disorders. A Rare disease is also referred to as orphan disease and is...
While the National Policy for Treatment of Rare Diseases was drafted in 2017, only six states have formed the mandatory state-level committee to address the needs of patients with rare...
JAIPUR: Father of a 21-month-old girl, who died of a rare genetic disorder called Gaucher disease on January 6, lives in the fear of losing his second child to the...
The committee noted that the prices of patented anti-cancer and antifungal drugs are “on the higher side” and cited the example of Rs 1 lakh being the price for just...