While the National Policy for Treatment of Rare Diseases was drafted in 2017, only six states have formed the mandatory state-level committee to address the needs of patients with rare...
JAIPUR: Father of a 21-month-old girl, who died of a rare genetic disorder called Gaucher disease on January 6, lives in the fear of losing his second child to the...
The committee noted that the prices of patented anti-cancer and antifungal drugs are “on the higher side” and cited the example of Rs 1 lakh being the price for just...
A recent international symposium in New Delhi on wheat-related disorders drew attention to celiac disease, one of the world’s most under-diagnosed medical conditions. AS a person with celiac disease, the...
In order to cut prices of patented medicines for cancer and rare diseases, a high-level government panel has made a series of far reaching recommendations including granting “compulsory license” to any Indian...
“In more than two decades, I have come across just three such cases. This is a very rare syndrome present from birth where the patient fails to automatically breathe,” the...
A full bench of the Kerala High Court has held that sales tax cannot be levied for medicines, implants, and other consumables used as part of a surgical procedure or...
Every country has its own challenge when it comes to addressing the rare disease policy, said Prasanna Kumar B Shirol, co-founder and Executive Director of Organization for Rare Diseases in...
