Rare diseases are severe and chronic illnesses and are often life-threatening. Patients suffering from rare diseases, especially Lysosomal Storage Disorders (LSDs), often lead a very incapacitating life With the new...
Nine Individuals and Organizations from Around the World will be Recognized for Their Positive Impact on the Rare Disease Community ALISO VIEJO, Calif., June 25, 2019 /PRNewswire/ —Global Genes®is pleased...
Earlier this month, Union Health Minister Harsh Vardhan chaired a high-level review meeting on non-communicable diseases. Also on the agenda was the reformulation of the national policy for treatment of...
The Government of Kerala had initially identified 3 nodal centers for the treatment of rare diseases across Kerala and additionally sanctioned an initial corpus of 50 Lakhs to initiate the...
I vaguely remember my childhood and I remember the episode of breathlessness, coughing, getting tired, waking up early and lot of stomach upset. And in my school years, I remember few...
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Despite court orders, Tamil Nadu is yet to roll out life-saving ERT Nine-year-old Praveen (name changed), suffering from a rare disorder, is awaiting the State government’s nod to avail of...
Vasan Bala’s upcoming directorial Mard Ko Dard Nahi Hota took the inspiration from a kid at a dentist’s clinic. While the name of the film takes us back to 1985’s...
City doctors rescue 13-year-old Mauritian from rare genetic disorder City doctors gave Ciara, a 13-year-old-girl from Mauritius, suffering from a rare Complement Deficiency genetic disease, a new lease of life. Suffering...
