Helpline
+91 8892 555 000
Email : contactus@ordindia.in

Centre takes u-turn on setting up of Rs 100 crore fund to treat rare diseases

A year after first announcing that a special fund of Rs 100 crore was being set up to help children suffering from rare diseases, the Centre has now taken a...

Read More

U-turn on fund for kids with rare diseases costly to treat

The Union health ministry has cited bureaucratic barriers and high costs to renege on its pledge to help treat patients, mostly children, with rare and expensive-to-treat diseases through a Rs...

Read More

No fund allotted to treat rare diseases despite claim in court: Centre

A petition on behalf of families of patients of rare diseases has sought government aid for treatment. It states that the ESI has the obligation not only under the Employees’...

Read More

With no clarity on aid policy, children with rare diseases suffer

...

Read More

A RARE Victory For Rare Disease Patients In India In Grave Danger

One of the unfortunate realities of Indian society and governance institutions at large is the fact that there is not enough conversation on the lives of persons with rare disease....

Read More

‘Handigodu’ patients to appeal for mercy killing

  Online Link...

Read More

Rare diseases policy still in draft state

Karnataka is the only state to have a Centre of Excellence for Rare Diseases at the government-run Indira Gandhi Institute of Child Health in Bengaluru. By Suraksha P Express News Service...

Read More

Gov’t to reduce burden for rare disease patients

By Jung Hae-myoung Starting next year, more patients battling rare diseases will pay less for their medical expenses, as 100 disorders have been newly added to the government’s subsidy list,...

Read More

Why Farber Disease May Be Misdiagnosed as Juvenile Idiopathic Arthritis

Farber disease is a rare, autosomal-recessive disorder caused by a mutation in the acid ceramidase gene, which leads to accumulation of sphingolipids in various tissues.1 It typically presents with a combination...

Read More

NRI techies master the art of giving to the motherland

Washington DC: Call it the “Art of Giving to the motherland, the techies’ way”. After building America with their brains and grit, the Indian techies are going all out to...

Read More

Highslide for Wordpress Plugin