Rare diseases are those that affect lesser number of people in the general population as compared to other diseases and disorders. A Rare disease is also referred to as orphan disease and is...
While the National Policy for Treatment of Rare Diseases was drafted in 2017, only six states have formed the mandatory state-level committee to address the needs of patients with rare...
JAIPUR: Father of a 21-month-old girl, who died of a rare genetic disorder called Gaucher disease on January 6, lives in the fear of losing his second child to the...
The committee noted that the prices of patented anti-cancer and antifungal drugs are “on the higher side” and cited the example of Rs 1 lakh being the price for just...
A recent international symposium in New Delhi on wheat-related disorders drew attention to celiac disease, one of the world’s most under-diagnosed medical conditions. AS a person with celiac disease, the...
In order to cut prices of patented medicines for cancer and rare diseases, a high-level government panel has made a series of far reaching recommendations including granting “compulsory license” to any Indian...
“In more than two decades, I have come across just three such cases. This is a very rare syndrome present from birth where the patient fails to automatically breathe,” the...
A full bench of the Kerala High Court has held that sales tax cannot be levied for medicines, implants, and other consumables used as part of a surgical procedure or...
