By Daphne Clarance: In February, the death of former Pakistan president Pervez Musharraf due to amyloidosis made headlines across the globe. As per reports, Google searches peaked with this rare...
Our Co founder Mr Prasanna Shirol , is a part of the “The Wellbeing Project” (Cohort 5). This is an effort to Catalyze a culture of Inner Wellbeing for all...
Chief Minister Manohar Lal Khattar Thursday inaugurated 46 health institutions in 17 districts and expanded the ambit of the monthly assistance of Rs 2,750 for patients suffering serious illnesses by...
Rare Disease (RD) is defined by the World Health Organisation (WHO) as an often debilitating, lifelong disease or disorder with a prevalence of 1 or less per 1,000 population. However,...
Ahead of the Assembly elections scheduled for May 10, 2023, the Organisation of Rare Diseases of India (ORDI) has called upon the political parties in Karnataka to include support for...
Ever heard of Congenital Central Hypoventilation Syndrome (CCHS)? This is a rare breathing disorder in which the person’s ability to breathe is compromised. The disease is life threatening as it...
In 2022, Novartis invested around $10 billion in overall research and development (R&D) and has already secured 23 approvals in the United States, European Union, China and Japan for new...
The Union Health Ministry has recently included six rare diseases into various groups of disorders under the National Policy for Rare Diseases (NPRD), 2021, enabling the patients of these diseases...
