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ORDI Appeals to State Governments to Implement Rare Disease Policy

New Delhi [India], Apr 21 (ANI): Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative...

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Towards Enabling Precision Medicine Cohort Studies at the Community Level

– Dr. Harsha K Rajasimha Co-Founder and Board Director, Organization for Rare Diseases India. Precision medicine paradigm is all about targeting medicines to patient cohorts that are most likely to...

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Washington, D.C. Shows Care for Rare Diseases with Racefor7

WASHINGTON, March 8, 2018 /PRNewswire/ — Rain did not dampen spirits for those racing against rare diseases. Racefor7 supporters in Washington, D.C. were greeted with rainy skies on Feb. 25,...

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Racefor7 – 2018 Media Coverage

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RAISING AWARENESS FOR RARE DISEASES: RACE FOR 7 – A 7000 METER WALK FOR 7000 RARE DISEASES

Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, today announced...

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Raising Awareness for Rare Diseases: Race for 7

Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India,...

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Raising Awareness for Rare Diseases: Race for 7

Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India,...

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Organization for Rare Diseases India announces new edition of Race for 7 in Mumbai

Mumbai: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, on Thursday announced...

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More funds sought for rare diseases patients

Bengaluru: The Organisation for Rare Diseases India (ORDI) organised a round table here on Friday to attract the attention of the state government on the plight of patients awaiting treatment. “The...

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Rare disease policy needs to be implemented immediately: Prasanna Shirol, Co- Founder & Executive Director, ORDI

In an interview with ETHealthworld, Prasanna Shirol, Co- Founder and Executive Director, Organization for Rare Disease India, Bengaluru, talks about the bottlenecks that still exist even after the formation of...

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