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Organization for Rare Diseases India announces new edition of Race for 7 in Mumbai

Mumbai: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, on Thursday announced...

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More funds sought for rare diseases patients

Bengaluru: The Organisation for Rare Diseases India (ORDI) organised a round table here on Friday to attract the attention of the state government on the plight of patients awaiting treatment. “The...

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Rare disease policy needs to be implemented immediately: Prasanna Shirol, Co- Founder & Executive Director, ORDI

In an interview with ETHealthworld, Prasanna Shirol, Co- Founder and Executive Director, Organization for Rare Disease India, Bengaluru, talks about the bottlenecks that still exist even after the formation of...

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Patients with rare, genetic disorders appeal for support

Lysosomal Storage Disorders (LSDs) are a group of over 50 rare, life-threatening, chronically debilitating diseases that occur due to the deficiency of specific enzymes in the body. With an aim...

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Rare disease educational brochure

Click here to view the Rare disease educational...

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Race For 7 – Rare Disease – Andhra Jyothy – Karnataka

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Run For A Cause

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Coverage Summary for ORDI press Conference

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Rare Disease Day: Race for 7 to be held on Feb 26

Bengaluru: The Organization for Rare Diseases India (ORDI), a non-profit organization committed to addressing the challenges of the rare disease community in the country, on Thursday announced the launch of 2017 Race...

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Rare Genomics Institute and ORDI are recipients of Sanofi Genzyme’s PAL Award 2016 to Develop Rare Disease Online Learning Modules

Los Angeles, CA and Herndon, VA January 31, 2017.  Rare Genomics Institute (RG) and the Organization for Rare Diseases India (ORDI) announced today that they are one of the recipients...

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