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Sickle cell screening for newborns starts in Nagpur

NAGPUR: With incidence of sickle cell genetic mutation being 22-40% in certain high-risk groups in the region, it is imminent to undertake screening programmes for newborns, marriageable youth and pregnant mother....

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Inauguration of First Paediatric Neuromuscular Clinic at Bangalore Baptist Hospital

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BANGALORE BAPTIST HOSPITAL IN ASSOCIATION WITH ORGANIZATION FOR RARE DISEASES INDIA INAUGURATES THE FIRST PAEDIATRIC NEUROMUSCULAR CLINIC, IN THE COUNTRY!!!

Bangalore Baptist Hospital in association with ORDI – Organization For Rare Diseases, India, today inaugurated India’s very first Paediatric Neuromuscular Service, simply called “The Muscle and Nerve Clinic”. This specialty...

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ORDI Appeals to State Governments to Implement Rare Disease Policy

    Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative to appeal to the...

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ORDI Appeals to State Governments to Implement Rare Disease Policy

New Delhi [India], Apr 21 (ANI): Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative...

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ORDI Appeals to State Governments to Implement Rare Disease Policy

Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative to appeal to the state governments...

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ORDI Appeals to State Governments to Implement Rare Disease Policy

New Delhi [India], Apr 21 (ANI): Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative...

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Towards Enabling Precision Medicine Cohort Studies at the Community Level

– Dr. Harsha K Rajasimha Co-Founder and Board Director, Organization for Rare Diseases India. Precision medicine paradigm is all about targeting medicines to patient cohorts that are most likely to...

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Washington, D.C. Shows Care for Rare Diseases with Racefor7

WASHINGTON, March 8, 2018 /PRNewswire/ — Rain did not dampen spirits for those racing against rare diseases. Racefor7 supporters in Washington, D.C. were greeted with rainy skies on Feb. 25,...

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Racefor7 – 2018 Media Coverage

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