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Patients with rare, genetic disorders appeal for support

Lysosomal Storage Disorders (LSDs) are a group of over 50 rare, life-threatening, chronically debilitating diseases that occur due to the deficiency of specific enzymes in the body. With an aim...

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Rare disease educational brochure

Click here to view the Rare disease educational...

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Race For 7 – Rare Disease – Andhra Jyothy – Karnataka

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Run For A Cause

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Coverage Summary for ORDI press Conference

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Rare Disease Day: Race for 7 to be held on Feb 26

Bengaluru: The Organization for Rare Diseases India (ORDI), a non-profit organization committed to addressing the challenges of the rare disease community in the country, on Thursday announced the launch of 2017 Race...

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Rare Genomics Institute and ORDI are recipients of Sanofi Genzyme’s PAL Award 2016 to Develop Rare Disease Online Learning Modules

Los Angeles, CA and Herndon, VA January 31, 2017.  Rare Genomics Institute (RG) and the Organization for Rare Diseases India (ORDI) announced today that they are one of the recipients...

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ORDIndia announces research collaboration with George Mason University, USA

ORDIndia announces research collaboration with George Mason University, USA with the newly established center for the study of chronic metabolic and rare diseases (CSCMRD). ORDI co-founder, Dr. Harsha Rajasimha to serve...

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Precision Medicine Can Offer Hope to Rare Disease Patients

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Why People With Rare Diseases Are Writing to PM Modi

He will turn two this October, but unlike other children his age Baby Haadi cannot sit up, make noises or eat. The little boy’s growth is severely delayed as he...

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