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PRESS RELEASE- Race for 7- Race Against Rare Diseases

Race for 7- Race Against Rare Diseases Race for 7 to make the voice of rare https://healthsavy.com/product/doxycycline/ diseases heard Bengaluru, February 19, 2016: The Organization for Rare Diseases India (ORDI),...

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Media Coverage of ORDI Conference in Mainline Publications

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Media coverage of ORDI Conference in Regional Publications

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Meeting people with rare diseases

Over two decades ago, Ravi and Nirmala from Bengaluru gave birth to their second child, a daughter who they named Dhanya. While they were ecstatic to welcome a new member...

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NGO to organise a race to raise funds for rare disease patients

BENGALURU: The Organization for Rare Diseases India (ORDI) would organise Race for 7, a unique first of its kind event to commemorate Rare Disease Day and draw attention to the...

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Run to create awareness about Rare Diseases

To draw attention to the needs of patients with rare diseases in India, the Organisation for Rare Diseases India (ORDI) will organise ‘Race for 7’, a 7-km run on February...

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Lack of experts and drugs turn rare ailments fatal

Four-year-old Kusuma of Subramanyapura is confined to the wheelchair, her body reduced to nothing more than an eggshell. When she was one, she developed Fibro Ossificans Progressiva (FOP), a genetic...

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No Human Life Should Be Judged By A Statistic

I do believe that life comes to a full circle, as if some mysterious writer called God were penning down the twists and turns of our life. For me, it...

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Kid fighting progeria aims to lessen sufferings of many like him

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NGO of the Month – Organization for Rare Diseases India (ORDI)

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