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Eeandu

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Andhra Jyothi

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Bangalore Mirror

With a sizeable number of the 13,000-plus infant deaths per year in Karnataka being attributed to rare diseases, patient-support groups are demanding the implementation of the proposed Orphan Drugs Act...

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Pharma Biz

The Indian Society of Clinical Research (ISCR) and the Organisation for Rare Diseases India (ORDI) are alarmed about the lack of treatment option for 70 million rare disease patients in...

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Clinical trials imperative to bring relief to patients with rare diseases

– By Neelam M Kachhap The rare diseases causes a range of physical, cognitive and developmental disabilities and occurs in about one in 10,000 live births Recently Rare Disease Day...

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The Hindu

With the country’s healthcare judging its patients by statistics, the Bengaluru-based Organisation of Rare Diseases India (ORDI) is drafting a state ‘orphan drug policy’ to aid those afflicted with ‘rare...

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Financial Chronicle – Express Healthcare

The rare diseases causes a range of physical, cognitive and developmental disabilities and occurs in about one in 10,000 live births Recently Rare Disease Day was observed by the Indian...

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Media Invitation: Rare Diseases – Initiatives in Karnataka

Karnataka Vision Group for Biotechnology (VGBT) and the Organization of Rare Diseases (ORDI) cordially invite you to a media briefing on Rare Diseases: Initiatives in Karnataka On the occasion of...

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Press Release: World Rare Diseases Day

World Rare Diseases Day: VGBT and ORDI partner in Karnataka Bangalore: Around seventy million patients in India (three to four million in Karnataka) are affected with one of more than...

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26 Feb 2015 – Press coverage

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