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Financial Chronicle – Express Healthcare

The rare diseases causes a range of physical, cognitive and developmental disabilities and occurs in about one in 10,000 live births Recently Rare Disease Day was observed by the Indian...

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Media Invitation: Rare Diseases – Initiatives in Karnataka

Karnataka Vision Group for Biotechnology (VGBT) and the Organization of Rare Diseases (ORDI) cordially invite you to a media briefing on Rare Diseases: Initiatives in Karnataka On the occasion of...

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Press Release: World Rare Diseases Day

World Rare Diseases Day: VGBT and ORDI partner in Karnataka Bangalore: Around seventy million patients in India (three to four million in Karnataka) are affected with one of more than...

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26 Feb 2015 – Press coverage

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Most patients get no treatments – Prasanna Shirol

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Vision group working on rare disease policy – TOI report

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Karnataka Vision Group ready with draft of Rare Diseases and Orphan Drugs Development Act

– Nandita Vijay, Bengaluru The Karnataka Vision Group on Biotechnology has now put in place the draft of the Rare Diseases and Orphan Drugs Development Act. Efforts are on to...

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Vision group working on rare disease policy

ORDI founder Members -Dr Vijay Chandru- Chairman & CEO Strand Life Sciences and Prasanna Shirol- Founder Member -ORDI in Bangalore Bio Conference 2015 along with other Speakers Mr Sandeep Sahaney-...

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CENTOGENE to collaborate with Organization of Rare Diseases of India

CENTOGENE is pleased to announce its sponsorship of the Organization of Rare Diseases of India (ORDI). ORDI is a not-for-profit organization founded and advised by key opinion leaders from medicine,...

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World Immunology day – By PIDPWS-ORDI and IAP Bangalore Chapter in Bangalore Medical College on 27.4.14- The Hindu

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Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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