Hereditary Angioedema (HAE) is a rare genetic condition that can significantly impact a patient’s quality of life. The journey of living with HAE is often marked by uncertainty, frustration, and...
By Monika Yadav Express News Service Sanofi Specialty Care, which has a portfolio of drugs for rare diseases, has received a recommendation from the Subject Expert Committee of the Drugs Controller...
By Daphne Clarance: In February, the death of former Pakistan president Pervez Musharraf due to amyloidosis made headlines across the globe. As per reports, Google searches peaked with this rare...
Our Co founder Mr Prasanna Shirol , is a part of the “The Wellbeing Project” (Cohort 5). This is an effort to Catalyze a culture of Inner Wellbeing for all...
Chief Minister Manohar Lal Khattar Thursday inaugurated 46 health institutions in 17 districts and expanded the ambit of the monthly assistance of Rs 2,750 for patients suffering serious illnesses by...
Rare Disease (RD) is defined by the World Health Organisation (WHO) as an often debilitating, lifelong disease or disorder with a prevalence of 1 or less per 1,000 population. However,...
Ahead of the Assembly elections scheduled for May 10, 2023, the Organisation of Rare Diseases of India (ORDI) has called upon the political parties in Karnataka to include support for...
