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ORDI News Letter Dec 2022

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Man’s inspiring tale of recovering from a rare disease will leave you teary-eyed

A story of a man who went from having a rare disease to becoming a fitness trainer has won hearts online. This will surely inspire you. ‘Life is unpredictable’ is...

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No patient benefitted from help scheme for rare disease: BJP MP to Health Minister

NEW DELHI, Jan 7: No patient has so far benefitted from a health ministry scheme which assures an assistance of ? 50 lakh to people with rare diseases, BJP MP...

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BJP MP Varun Gandhi says no rare disease patient benefited from govt scheme

Children below six years of age are among 432 patients – suffering from rare diseases – who have not been able to get the benefits of a government scheme formulated...

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DBT soon to begin research on human genetic disease with focus on rare genetic disorders

The Department of Biotechnology (DBT) has called for research and development (R&D) proposals on human genetic diseases focusing on rare genetic disorders and identifying the genes that cause the disease,...

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Three brothers with mystery condition will never grow taller than toddlers

Three brothers have a mystery condition which means they have never grow taller than toddlers. Daljeet, 13, Kamaljit, 11, and Ramneet Singh, 7, are around 20in tall and according to...

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Telangana: 23-day-old with rare disease gets liver transplant

HYDERABAD: A 23-day-old baby underwent liver transplant in a first of its kind case in the state. The baby was diagnosed with metabolic liver disease known as Galactosemia, a rare hereditary disorder. The...

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Poonam Kaur suffering from rare health condition Fibromyalgia

Poonam Kaur Health Condition: Poonam Kaur is suffering from a rare disease. Poonam Kaur  is currently suffering from fibromyalgia and her condition seems to be stable. The actress has made a name for...

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ORDI News letter Nov 2022

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India’s first national repository for life science data opens in Faridabad

Union Minister of State (Independent Charge) Ministry of Science and Technology; Minister of State (Independent Charge) Ministry of Earth Science; MoS PMO, Personnel, Public Grievances, Pensions, Space and Atomic Energy,...

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