Boehringer Ingelheim Our team from the India, Middle East, Turkey, and Africa region recently organized a rare disease summit, bringing together healthcare professionals, patient organization representatives, and policy makers....
June 28 is International Newborn Screening Day. The purpose of newborn screening is to identify conditions which can be treated, especially if caught early, so that affected children can live...
KEM Hospital, one of the 11 Centres of Excellence (CoE) for Rare Diseases in India, is facing challenges in fulfilling its mandate due to a lack of designated space and...
Hereditary Angioedema (HAE) is a rare genetic condition that can significantly impact a patient’s quality of life. The journey of living with HAE is often marked by uncertainty, frustration, and...
By Monika Yadav Express News Service Sanofi Specialty Care, which has a portfolio of drugs for rare diseases, has received a recommendation from the Subject Expert Committee of the Drugs Controller...
By Daphne Clarance: In February, the death of former Pakistan president Pervez Musharraf due to amyloidosis made headlines across the globe. As per reports, Google searches peaked with this rare...
