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Stem Cell technology offers new hope for treating rare genetic disorders: Rakesh Mishra

“The very nature of disease that the gene is defective makes it very difficult to identify, diagnose and the treatment is a challenge as well as extremely expensive,” said Dr....

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ORDI News letter Sept 2022

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Andhra Pradesh CM YS Jagan Mohan Reddy grants Rs 1 crore for rare disease Kid

According to the tweet, while Chief Minister Jagan Mohan Reddy was visiting the Konaseema flood plains, he came across Honey’s parents, who were holding a placard seeking help. The CM...

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The drug for ALS receives a rare second review at a high-stakes FDA meeting

The closely watched experimental drug for Lou Gehrig’s disease received an unusual second glance from US regulators on Wednesday after heavy pressure to approve treatment for people with the terminal...

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ORDI News letter august 2022

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Spreading hope about Spinal Muscular Atrophy Publication – Bangalore Mirror

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We care for SMA: Fighting Spinal Muscular Atrophy organised at Bangalore Baptist Hospital Publication – Shreyas Webmedia Solutions

August 29, 2022: The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases...

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We care for SMA: Fighting Spinal Muscular Atrophy organised at Bangalore Baptist Hospital Publication – Business News This Week

August 29, 2022: The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases...

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Bangalore Baptist Hospital teams up with ORDI to fight spinal muscular atrophy Publication – Pharmabiz

Bangalore Baptist Hospital teams up with Organization for Rare Disease India (ORDI) to fight spinal muscular atrophy. Globally the month of August is commemorated as spinal muscular atrophy awareness month....

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Fighting Spinal Muscular Atrophy organised at Bangalore Baptist Hospital Publication – WordPress

August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases like SMA are difficult to...

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