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Duty Cuts Easy Imports, rare disease costs remain crushing nationwide

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Budget cuts import costs of certain cancer & rare disease drugs. Why it offers little relief to patients

New Delhi: Finance Minister Nirmala Sitharaman Sunday announced a full exemption from basic customs duty on 17 life-saving drugs including cancer drugs. She also included seven additional rare diseases that will now qualify...

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Duty exemption on rare disease drugs fails to address affordability crisis, says expert

Finance Minister Nirmala Sitharaman on Sunday, 1 February, announced duty exemptions on personal imports of drugs, medicines, and Food for Special Medical Purposes for seven additional rare diseases in the...

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Rare Diseases In India: Why Early Diagnosis Is Still The Biggest Missing Link

In a nation of over 1.4 billion people, the word “rare” can be very misleading. While each specific disease might affect only a small number of people, the total number...

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The silent epidemic. ‘Rare diseases aren’t rare, they’re orphaned’

Eight-year-old Krish Dev is recovering from a surgery performed to support his neck, as his body stopped growing even as his head continued to do so. Witty and sharp as...

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Home-based education: Bridging the gap for children with disabilities

Samagra Shiksha Abhiyan offers home-based learning for students with severe disabilities, yet problems in access, awareness, and support remain. Thirteen-year-old Rohan (name changed), a little shy and very happy, envelops his...

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Data exclusivity will extend pharma monopolies, delay access to affordable medicines, activists say

As the Central Drugs Standard Control Organization (CDSCO) considers introducing data exclusivity provisions into India’s drug regulatory laws, healthcare activists warned that the move could delay access to lifesaving generic...

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Ultra Rare Genetic disorder Diagnosed in 11-Year old Girl / Pseudo – TORCH

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Times of India Article about Rare Diseases awareness

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Delhi HC asks Centre to release ₹10 crore to AIIMS for treatment of rare diseases

Judge said the treatment of 18 patients had already begun and discontinuation of the treatment would have a negative repercussion on their health The Delhi High Court has refused to...

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