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Delhi HC asks Centre to release ₹10 crore to AIIMS for treatment of rare diseases

Judge said the treatment of 18 patients had already begun and discontinuation of the treatment would have a negative repercussion on their health The Delhi High Court has refused to...

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Govt to launch a programme to develop 12 indigenous drugs for 8 rare diseases

New Delhi: The Central government is set to launch a scheme to develop 12 indigenous drugs for eight rare diseases, health minister J.P. Nadda said on Monday. The programme aims...

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Kerala teen battling rare brain disease with 97% mortality rate survives

A 14-year-old boy from Kerala’s Kozhikode who was infected with a rare brain disease, amoebic meningoencephalitis, has survived after undergoing treatment for three weeks. The disease, with a mortality rate...

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HC grants GST exemption on import of medicine for rare disease

The Kerala High Court has allowed the mother of a three-year-old boy suffering from Spinal Muscular Atrophy (SMA) to buy Risdiplam, an imported drug for treatment of the rare disease, without...

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Refocusing on Rare Diseases

The US Food and Drug Administration (FDA) approval in December 2023, of two milestone treatments, Casgevy and Lyfgenia, representing the first cell-based gene therapies for the treatment of a rare...

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Rare disease of children: Kerala Family plans to move SC seeking assisted death

KOTTAYAM : Smitha Antony and Manu Joseph seem to have hit a brick wall in terms of their physical and emotional agony. The couple from Kozhuvanal, in Kottayam district, are...

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Two-month-old receives life-saving bone marrow transplant

A two-month-old baby girl in Mumbai has become one of the youngest patients to receive a bone marrow transplant from an unrelated donor. The baby was diagnosed with a rare...

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Clinical trial

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Nerve Disorder : A1 tool can Aid in screening

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Statement Regarding the Termination of Sanofi’s Proposed Acquisition of Maze Therapeutics’ Pompe Disease Drug

Following Sanofi’s decision to terminate its proposed acquisition of an exclusive license to Maze Therapeutics Inc.’s developmental drug to treat Pompe disease, the Federal Trade Commission moved to dismiss its...

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