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Disquiet over govt.’s new policy for rare diseases

Click the link for website: https://www.thehindu.com/news/national/disquiet-over-govts-new-policy-for-rare-diseases/article34225606.ece...

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CRISPR Fixes Rare Mutation for the First Time in a Live Animal

Kids with the unique “duplication mutation” usually lose their ability to walk around 12 years old. For the first time in a live animal, researchers have successfully reversed a gene...

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Click Below Link: India’s healthcare system needs a concrete rare disease policy The Delhi High Court ordered the Centre to finalise and notify the National Health Policy for Rare Diseases...

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Kerala seeks Centre”s assistance in matching grant to expand treatment to more rare disease patients

Click below link: https://www.outlookindia.com/newsscroll/kerala-seeks-centres-assistance-in-matching-grant-to-expand-treatment-to-more-rare-disease-patients/2053240 Thiruvananthapuram, Mar 25 (PTI): As the Ministry of Health and Family Welfare is finalising the long-pending National Policy on Rare Diseases, the Kerala state health department...

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Delhi High Court directs setting up of inter-ministerial group on rare diseases

Click below link: https://www.indialegallive.com/constitutional-law-news/courts-news/delhi-high-court-inter-ministerial-group-rare-diseases/            ...

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Delhi HC directs Center to Notify health policy for rare diseases by March 31

Click below link: https://medicaldialogues.in/state-news/delhi/delhi-hc-directs-center-to-notify-health-policy-for-rare-diseases-by-march-31-75856...

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Delhi HC gives nod for NCRD, orders to finalise National Health Policy for Rare Diseases before March 31

Click Below Link: https://www.aninews.in/news/national/general-news/delhi-hc-gives-nod-for-ncrd-orders-to-finalise-national-health-policy-for-rare-diseases-before-march-3120210323190719/...

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[BREAKING] Delhi High Court sets up Rare Diseases Committee and Fund; directs notification of National Policy for Rare Diseases

Click below link: barandbench.com/news/litigation/delhi-high-court-sets-up-rare-diseases-committee-fund-directs-notification-national-policy The Court has directed the Central government to finalized and notify the National Health Policy for Rare Diseases on or before March 31, 2021. [BREAKING] Delhi...

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Delhi High Court Directs Setting Up Of Rare Diseases Fund, Committee & Notification Of Policy

Click below link: https://www.livelaw.in/news-updates/delhi-high-court-rare-diseases-committee-all-india-institute-of-medical-sciences-aiims-171579  ...

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Notify health policy for rare diseases by March 31: Delhi HC to Centre

Click below link: Notify health policy for rare diseases by March 31: Delhi HC to Centre Topics Delhi High Court Press Trust of India  |  New Delhi Last Updated at March 23,...

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