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Notify health policy for rare diseases by March 31, HC asks Centre; directs setting up of R&D body

Click below link: https://www.newindianexpress.com/nation/2021/mar/23/notify-health-policy-for-rare-diseases-by-march-31-hc-asks-centre-directs-setting-up-of-rd-body-2280418.html NEW DELHI: The Delhi High Court Tuesday asked the Centre to finalise and notify the National Health Policy for Rare Diseases by March 31, and directed...

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Know what diseases fall under Rare Diseases category

Click for the article: https://www.indiatvnews.com/health/know-what-diseases-fall-under-rare-diseases-category-691930 Know what diseases fall under Rare Diseases category As the name suggests Rare Diseases are those that are less in occurrence than compared to other...

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Two-year-old Daksha and the uphill task of battling rare diseases

A housewife from Kannur, she had travelled even during the peak Covid days to AIMS Kochi to ensure that her child’s treatment was not affected. KOCHI: Dheeshma Sujesh is willing to...

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A Panel discussion highlights issue rare disease patients face

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Delhi HC asks Centre to help fund treatment of minor suffering from rare disease

Justice Najmi Waziri, on March 4, took note of the submission by the child’s mother who had contended that there is some hope for treatment of her child in the...

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AIIMS Bhopal organises events on Rare Disease Day

The Department of Pediatrics, AIIMS Bhopal organised several events on the occasion of “Rare Disease Day” on Friday. The purpose of these events was to raise awareness for children suffering...

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Delhi High Court Seeks Union’s Health Budget Details, Crowdfunding Proposals On Petition For Treatment of Rare Diseases

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Article published about Rare Diseases in samyukta karnataka news paper

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LSDS News

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Rare Disease Day in India: 7 Reasons to Rejoice

Click Below Link: https://www.linkedin.com/pulse/rare-disease-day-india-7-reasons-rejoice-arjun-gupta/?trackingId= The first Rare Disease day was observed by EURODIS and many other nations on 29th February 2008 to raise awareness for rare diseases. The date was very thoughtfully...

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