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Rare Disease Day: Health advocacy groups press for govt policy, say India’s numbers unknown

Click Below Link: https://www.deccanherald.com/science-and-environment/rare-disease-day-health-advocacy-groups-press-for-govt-policy-say-india-s-numbers-unknown-955970.html...

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”Wu Assassins” standalone movie ‘Fistful of Vengeance’ in development at Netflix

Click Below Link https://www.outlookindia.com/newsscroll/wu-assassins-standalone-movie-fistful-of-vengeance-in-development-at-netflix/2037369 Los Angeles, Feb 27 (PTI) Streaming platform Netflix has ordered a standalone movie based on supernatural action series “Wu Assassins”, with Roel Reine attached to direct....

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What do you do when your’s child life is dependent on Rs. 16 Crore drug

Click below link published in times of...

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Rare diseases call for stepped-up R&D

Click Here: https://economictimes.indiatimes.com/blogs/et-editorials/rare-diseases-call-for-stepped-up-rd/ The last day of February is observed as the day of rare diseases, a group of some 7,000 afflictions that mar the lives of some 300 million...

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Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases

The high-level recommendations which were the outcome of the discussions will be shared with the Indian Government To chalk out solutions and to address the key challenges of rare diseases...

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Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases

To chalk out solutions and to address the key challenges of rare diseases in India, Government of Karnataka along with People to People Health Foundation (PPHF), a public health organisation...

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Pompe News

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Lab notes: Marriages within castes may have harmed the health of many communities in India

Endogamous marriages over generations has led to genetic isolation leaving many groups vulnerable, a new study finds. The occurrence of genetic diseases in certain subpopulations in India and other countries...

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South Region Virtual Rare Disease Consultation on 18th February 2021 – Joining Link

Hello All, State government of Karnataka is organising a South Region Virtual Rare Disease Consultation in collaboration with PPHF. The objective of the virtual consultation is to address the key unmet...

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Watch NewX A-List Interview of Mr. Prasanna Shirol; the story of ORDI that begins from going Pillar to Post for his daughter’s undiagnosed Rare Condition until he chooses the path to Rare Advocacy.

https://youtu.be/KnZiSIhQGlE    ...

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