Race for 7 is an annual mass “Awareness Run/Walk/Ride” being organised on “World Rare Disease Day” on 28th February 2021 at 6.30 am....
A genetic disease occurs because of a change or alteration in the DNA, writes a clinical geneticist. The parents of a two-year-old boy brought to our genetics clinic in Manipal...
The two children, who are two and three years old respectively, are suffering from Mucopolysaccharidosis II or MPS II (Hunter Syndrome, Attenuated Type) which is a rare disease. NEW DELHI:...
Click below link to know more information https://timesofindia.indiatimes.com/city/thiruvananthapuram/kerala-government-offers-help-to-bedridden-youth/articleshow/80719363.cms...
New Delhi, Feb 4 () The Delhi High Court was informed on Thursday by the Ministry of Health that there are over five lakh patients suffering from rare disease Duchenne...
The Centre on Thursday informed the Delhi high court that it does not have the budget to treat over five lakh people suffering from a rare disease, Duchenne muscular dystrophy...
In draft policy govt. has proposed crowd-funding for treatment of high-cost rare diseases The Delhi High Court on Thursday directed the Centre to finalise the National Health Policy for Rare...
Click Below Link https://www.ndtv.com/india-news/woman-undergoes-robotic-surgery-for-rare-disease-in-delhi-2360115 The patient presented with a history of hoarseness of voice and swelling in the neck that had developed two months ago, according to Arun Prasad, a...
New Delhi, Jan 28 (PTI) The Delhi High Court on Thursday directed the Centre to finalise by March 31 its new National Health Policy for Rare Diseases of 2020 and...
