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Former India goalkeeper Prasanta Dora dies of Rare Disease

Former India goalkeeper Prasanta Dora, who made a name for himself while playing for big three clubs of Kolkata Maidan, died on Tuesday. He was 44 and is survived by...

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Gene therapy started at Baptist Hospital Bangalore

Congratulations to the entire team. Gene therapy started to Baby Fatima at Baptist Hospital...

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Parents Of Baby Suffering From Rare Disorder Seek Help From Maharashtra Govt

As baby suffering from rare disorder whose treatment costs Rs 16 crore enters critical stage, parents and experts urge state to help The condition of baby Teera Kamat, who was...

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Two-Month-Old Baby Battling Rare Disease To Receive World’s Most Expensive Injection

Suffering from genetic spinal muscular atrophy, the baby is undergoing gene theray and will require an injection that costs Rs 16 Crores An eight-week-old baby in Britain will receive an...

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First woman treated with CRISPR for Sickle Cell Disease

First woman treated with CRISPR for Sickle Cell Disease treatment is showing good recovery after 17 months of treatment. Victoria gray, 34, from USA becomes the first woman to show promising results...

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Virtual consultation on rare diseases held by PPHF

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Unhappy with draft of rare diseases 2020 Policy

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Karnataka Students with Rare Disease to get 2 hours more for exam

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Every breath counts: India’s fight against pneumonia

Pneumonia is a pox on the house of public health worldwide – especially where children are concerned. In 2017 alone, the disease killed 2.56 million people worldwide. Of these, almost one-third...

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First time in India, Pompe patient gives birth to healthy baby

For the first time in India, a Pompe patient has successfully given birth to a healthy baby. Pompe disease is a Lysosomal Storage Disorder (LSD), a serious chronic, debilitating condition,...

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