The Government of Kerala had initially identified 3 nodal centers for the treatment of rare diseases across Kerala and additionally sanctioned an initial corpus of 50 Lakhs to initiate the...
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Despite court orders, Tamil Nadu is yet to roll out life-saving ERT Nine-year-old Praveen (name changed), suffering from a rare disorder, is awaiting the State government’s nod to avail of...
Vasan Bala’s upcoming directorial Mard Ko Dard Nahi Hota took the inspiration from a kid at a dentist’s clinic. While the name of the film takes us back to 1985’s...
City doctors rescue 13-year-old Mauritian from rare genetic disorder City doctors gave Ciara, a 13-year-old-girl from Mauritius, suffering from a rare Complement Deficiency genetic disease, a new lease of life. Suffering...
Chennai: Having 95 patients registered with rare disorders at the Institute of Child Health and Hospital for Children (ICH & HC), patients are awaiting policy-level changes to avail of treatment...
JAIPUR: Father of a 21-month-old girl, who died of a rare genetic disorder called Gaucher disease on January 6, lives in the fear of losing his second child to the...
The committee noted that the prices of patented anti-cancer and antifungal drugs are “on the higher side” and cited the example of Rs 1 lakh being the price for just...
