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Kids die of rare diseases, as govt struggles fund shortage

The ministry of health and family welfare that is getting continuous requests from patient organizations for funds has reached out to the finance ministry seeking financial help. New Delhi: Several...

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A rare-disease entrepreneur follows an unconventional drug development path

In 2012, Ethan Perlstein challenged the academic status quo. Now as CEO of the start-up Perlara, can he do the same for the biotech industry? In 2012, molecular biologist Ethan...

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A comparative study of orphan drugs in US, EU & India

Today, more than 5,000 diseases are catalogued as “rare” by the scientific community, so long as they affect small sections of population. The drugs used for the treatment of rare...

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Sickle cell screening for newborns starts in Nagpur

NAGPUR: With incidence of sickle cell genetic mutation being 22-40% in certain high-risk groups in the region, it is imminent to undertake screening programmes for newborns, marriageable youth and pregnant mother....

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