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CM Khattar continues with health infra push, opens 46 facilities in 17 districts

Chief Minister Manohar Lal Khattar Thursday inaugurated 46 health institutions in 17 districts and expanded the ambit of the monthly assistance of Rs 2,750 for patients suffering serious illnesses by...

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India Exempts Rare Disease Drugs, Keytruda From Customs Duty – Is It Enough?

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Girl suffers from rare breathing condition, means she could die when asleep: Report

Ever heard of Congenital Central Hypoventilation Syndrome (CCHS)? This is a rare breathing disorder in which the person’s ability to breathe is compromised. The disease is life threatening as it...

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Bring More Rare Diseases Under NPRD

The Union Health Ministry has recently included six rare diseases into various groups of disorders under the National Policy for Rare Diseases (NPRD), 2021, enabling the patients of these diseases...

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Free Treatment For Children Suffering Rare Disease, Delhi HC Sends Notice To Centre, AIIMS

Issuing notice to Centre and AIIMS, the matter has been listed by the Delhi High Court for hearing with other connected matters on April 13. In the latest development, the...

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Govt gives full exemption to all imported drugs for rare diseases treatment; Industry leaders welcome move

In a landmark move, the central government on Thursday announced that it has given full exemption from basic customs duty on all drugs and Food for Special Medical Purposes imported...

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On March 28, Congress leader and MP Shashi Tharoor shared the story of a young couple who had approached him for exemption of duty on a drug they imported for...

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Digital Portal Launched For Crowd Funding For Patients Of Rare Diseases

Ministry of Health and Family Welfare has written to Department of Revenue for registration of Crowd Funding Portal for rare disease under Section 80G of the Income Tax ActMinistry of...

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Govt move to eliminate sickle cell anaemia a good decision but it may not be easy

The Union Budget presented by Finance Minister Nirmala Nirmala Sitharaman on February 1 included a declaration to launch a project to eliminate sickle cell anaemia from the country by 2047....

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SEC recommends waiver of local phase III and IV trials for Sanofi’s orphan drug to treat Pompe disease

The Subject Expert Committee (SEC) that advises the drug regulator of the country has recommended waiver of local phase III and IV clinical trials in India for Sanofi Healthcare India’s...

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