The Union Health Ministry has recently included six rare diseases into various groups of disorders under the National Policy for Rare Diseases (NPRD), 2021, enabling the patients of these diseases...
Issuing notice to Centre and AIIMS, the matter has been listed by the Delhi High Court for hearing with other connected matters on April 13. In the latest development, the...
In a landmark move, the central government on Thursday announced that it has given full exemption from basic customs duty on all drugs and Food for Special Medical Purposes imported...
On March 28, Congress leader and MP Shashi Tharoor shared the story of a young couple who had approached him for exemption of duty on a drug they imported for...
Ministry of Health and Family Welfare has written to Department of Revenue for registration of Crowd Funding Portal for rare disease under Section 80G of the Income Tax ActMinistry of...
The Union Budget presented by Finance Minister Nirmala Nirmala Sitharaman on February 1 included a declaration to launch a project to eliminate sickle cell anaemia from the country by 2047....
The Subject Expert Committee (SEC) that advises the drug regulator of the country has recommended waiver of local phase III and IV clinical trials in India for Sanofi Healthcare India’s...
A story of a man who went from having a rare disease to becoming a fitness trainer has won hearts online. This will surely inspire you. ‘Life is unpredictable’ is...
NEW DELHI, Jan 7: No patient has so far benefitted from a health ministry scheme which assures an assistance of ? 50 lakh to people with rare diseases, BJP MP...
Children below six years of age are among 432 patients – suffering from rare diseases – who have not been able to get the benefits of a government scheme formulated...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
