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Rare Heart Surgery Adds Feather To GNRC Cap

GUWAHATI: A complicated and rare bicuspid aortic valve surgery on a 41-year old woman of the state was successfully carried out recently at GNRC Hospitals here, which is the first...

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HC Refers Boy With Rare Disease To IGICH

The High Court of Karnataka on Friday passed an interim order to shift a toddler afflicted with Spinal Muscular Atrophy (SMA) Type 1, a rare disease, to the Indira Gandhi...

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Personalized Genomics Will Become An Integral Part Of Customized Healthcare: Subhamoy Dastidar

In an exclusive interaction with BW Health care world, Subhamoy Dastidar, Co-Founder & Director, Lilac Insights, speaks about the firm and more. Excerpts: Tell us about the recent trends in...

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FDA Approves Nexviazyme® (avalglucosidase alfa-ngpt), An Important New Treatment Option For Late-Onset Pompe Disease

PARIS – August 6, 2021 – The U.S. Food and Drug Administration (FDA) has approved Nexviazyme® (avalglucosidase alfa-ngpt) for the treatment of patients one year of age and older with late-onset Pompe disease, a progressive...

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Roche Launches Spinal Muscular Atrophy Treatment Drug In India Priced At Around Rs 6 lakh Per Bottle

The drug is approved for the treatment of SMA in adults and children 2 months of age and older, Roche said adding that it was approved by the Indian health...

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INDIAN MAN SLEEPS FOR 300 DAYS A YEAR DUE TO RARE DISORDER

JAIPUR: A Indian man, 42, has gained popularity after becoming known for sleeping 300 days a year due to a rare disorder, Axis Hypersomnia. The man named Purkharam, who is...

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Don’t want Tom, Dick and Harry to collect money: HC on crowdfunding for treatment of rare diseases

There has to be some government control over the money being collected via crowdfunding for treatment of rare diseases and every “Tom, Dick and Harry” cannot be permitted to raise...

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Kerala High Court Orders Constitution Of Medical Board To Examine Infant Suffering From Rare Disease

The child’s father approached the Court seeking free treatment from the State. One dose of the required life-saving drug costs Rs. 18 crores. The Kerala High Court on Tuesday directed...

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Rare Disease Patients Deprived Of Central Funds, Karnataka Govt Aid To Go Dry Soon

The IGICH will face a serious difficulty from August 2021, the High Court observed on June 18 this year.   BENGALURU: In an ongoing case in the Karnataka High Court...

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Covishield vaccine carries slightly higher risk of bleeding disorders:

Reports of rare clotting and bleeding disorders in younger adults, some fatal, led a number of countries to limit the vaccine’s use to older people, and a few to drop...

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