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International Addison’s Day.

This May 29th, we observe the International Addison’s Day. Let’s come together and join hands to raise awareness amongst the general public and decision- makers about Addison’s disease and help...

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1st Feb 2020, ORDI appeals for opinions on Rare Disease Policy from voices across the country

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DNA Day

National DNA Day is a unique day when students, teachers, and the public can learn more about genetics and genomics. The day commemorates the completion of the Human Genome Project...

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Rare Disease Day Event: Racefor7 2020

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Rare Disease patients thanking ESI and Karnataka Govt. for Treatment Support

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Standing in solidarity to prevent birth defects

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Standing in solidarity to prevent birth defects

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Honoring the Medical fraternity for its relentless efforts

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International Behcet’s Day

On May 20 this day, help us in illuminating this ultra rare disease; in fact, a disease that is nearly unheard. Very little is understood about this Rare Behcet Syndrome....

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World IBD Day

Pediatric Crohn’s disease is a rare, inflammatory bowel disease characterized by severe, chronic inflammation of the intestinal wall or any portion of the gastrointestinal tract. Crohn’s Disease can be caused...

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