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“Bhimrao Ambedkar” Jayanthi 14 April

Bhimrao Ramji Ambedkar (14 April 1891 – 6 December 1956), also known as Babasaheb Ambedkar, was an Indian jurist, economist, politician and social reformer who inspired the Dalit Buddhist movement and campaigned against social discrimination towards the untouchables (Dalits). He was independent India’s first Minister of...

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Fabry Awareness day

We want everyone to be aware of Fabry disease! Join us in spreading awareness about our rare disease. Education and awareness are critical to increasing the recognition, diagnosis, understanding and...

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Janatha Curfew – March 22

Prime Minister Narendra Modi Thursday addressed the nation on the coronavirus pandemic and urged all citizens to support a ‘janata curfew’ on Sunday, March...

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International Women’s Day – 8th March

International Women’s Day (March 8) is a global day celebrating the social, economic, cultural and political achievements of...

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World Birth Defect Day

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World Birth Defect Day

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We Care for Rare and we Love the Rare Disease community!

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1st Feb 2020, ORDI appeals for opinions on Rare Disease Policy from voices across the country

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World Cancer Day -4th February

World Cancer Day is the one singular initiative under which the entire world can unite together in the fight against the global cancer...

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International Day of Education – 24th January

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Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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