Juvenile Idiopathic Arthritis is a rare disease that affects children under 16 years; impacting approx. 1 in 1000 children Early recognition of arthritis is extremely important for better life quality...
This July 12th is celebrated as the World Heterochromia Day, or the Different Colored Eyes Day. This day recognizes those who have two different colored eyes! Let us celebrate this...
Happy Doctor’s Day to all the doctors who always put their patients first and do their best to gift health to their patients.A doctor is bestowed with the eye to...
Today is World Vitiligo Day. Join us in raising awareness on this chronic disease and in rooting for Vitiligo Warriors...
Today is International Dravet Syndrome Awareness Day. A rare disease on the spectrum of SCN1A-related disorders. Join us as we raise awareness and celebrate Dravet Warriors...
21st of June marks as the special day of recognition of ALS, a neurodegenerative disease that affects people in every part of the globe. It does not discriminate on the...
With Share something Saturday we officially wrap up Rare Chromosomal Disorder Awareness week. Today is the day to talk, whether it be your personal experiences or something that you are...
The purpose World Sickle Cell Day is to improve public awareness about this Rare genetic disease. This day is celebrated to improve treatment outcomes of sickle cell disease through early...
Today is the day to take charge and follow your passion. Do something that you have been waiting to do for a long time. Share your motivations with us. #RareandMotivated...
Today’s the day to use all the resources we have in hand – reference books, news articles, and the whole internet – to learn more about rare chromosomal disorders, and...
