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The complexity of funding rare disease research: an IRDiRC assessment of the landscape

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Global health for rare diseases through primary care

New publication! The IRDiRC Primary Care Task Force has released an insightful paper titled “Global health for rare diseases through primary care” in The Lancet Global Health. Discover how primary...

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Rare Disease Day in India: 7 Reasons to Rejoice

Click Below Link: https://www.linkedin.com/pulse/rare-disease-day-india-7-reasons-rejoice-arjun-gupta/?trackingId= The first Rare Disease day was observed by EURODIS and many other nations on 29th February 2008 to raise awareness for rare diseases. The date was very thoughtfully...

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Requesting Government Support for Rare Disease Worriers & their families living in India and for raising awareness on World Rare Disease Day

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ORDI Point of View Rare Diseases Policy Mar 2017

National Agenda on Rare Diseases: To review the current situation of rare diseases in India and define rare diseases in the Indian context To establish norms for laboratories/ centers for...

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IRDiRC conference, Paris – 2017

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Orphan Drug Act and Rare Disease Policy – Are they same?

Click here to download the article.  By Harsha Karur Rajasimha, PhD Co-founder, Organization for Rare Diseases India Co-Director, Center for Rare Diseases, George Mason...

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Organization for rare diseases India (ORDI) – addressing the challenges and opportunities for the Indian rare diseases’ community

A Review of the state of Rare Diseases in India By : HK RAJASIMHA, PB SHIROL, P RAMAMOORTHY, M...

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Making people realize that genetic problems are treatable is a big challenge | India Medical Times

By Dr I C Verma Director, Centre of Medical Genetics Sir Ganga Ram Hospital, New...

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Statements from doctors and hospitals

ORDI initiative By :...

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