New publication! The IRDiRC Primary Care Task Force has released an insightful paper titled “Global health for rare diseases through primary care” in The Lancet Global Health. Discover how primary...
Click Below Link: https://www.linkedin.com/pulse/rare-disease-day-india-7-reasons-rejoice-arjun-gupta/?trackingId= The first Rare Disease day was observed by EURODIS and many other nations on 29th February 2008 to raise awareness for rare diseases. The date was very thoughtfully...
...
National Agenda on Rare Diseases: To review the current situation of rare diseases in India and define rare diseases in the Indian context To establish norms for laboratories/ centers for...
Click here to download the article. By Harsha Karur Rajasimha, PhD Co-founder, Organization for Rare Diseases India Co-Director, Center for Rare Diseases, George Mason...
A Review of the state of Rare Diseases in India By : HK RAJASIMHA, PB SHIROL, P RAMAMOORTHY, M...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
