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PRADER-WILLI SYNDROME (PWS), Scientific and Family conference

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Concurrent Open Panel Session (HALL A)

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Congenital Hyperinsulinism India In Association for rare diseases in India

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Webinar – On Global garrod’s Day

Each year, in celebration of Sir Archibald Garrod’s initial AKU description back in 1902, At ORDI in association with Department of Genetics, CMC Vellore together hold the awareness & educational...

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Innovative and Novel Processes for Existing APIS in Addition to Custom Synthesis

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Meeting...

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Public Webinar On Ethics,Compassion,Dignity In End Of Life Care & Death.

To Join The Zoom Webinar ,Click On The Link:-...

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Cystic Fibrosis Day

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CP Mimics – Session 15

Speakers: Hereditary Spastic Paraparesis in Children – Dr. Renu Suthar Genetics of Paediatric Stroke – Dr. Siddharth Shah Radiological PVL Mimics – Dr. Kish Mankad’s...

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Inherited Structural Brain Abnormalities – Session 14

Speakers: Lissencephaly Pachygyria spectrum Disorders – Dr. Asha Thomas Cortical Malformations: Anatomical & Genetic classification – Dr. Lokesh Lingappa Posterior Fossa Malformations – Dr. Sniya...

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Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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