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An appeal for Orphan Drug Policy and National Policy for Rare Diseases

ORDI Co-founder and executive director Mr.Prasanna Shirol, ORDI Scientific Advisor Dr.Sudheendra Rao and team have participated for the foundation stone laying occassion of ” Rare Disease Research and Training Center” at CHG campus on 5th Aug 2022. Team has got an opportunity to interact many Rare Disease patients and family on the occassion. Mr. Prasanna Shirol has submitted a request letter for Orphan Drug Policy and NPRD implementation to IT, BT minister Dr.Ashwath Narayana who was the chief guest of the occasion.

 

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