Our director Prasanna shirol and Sharada shirol today celebrated Makara Sankaranti by visiting Mr Balakrishanas house and his son Purishottam who is diagnosed with MPS . Both Mr Balakrishna and Purishotham accompanied to meet Sirisha diagnosed with OI and staying alone in Bangalore alone with care taker.
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
