ORDI was launched at a formal ceremony at the constitution club of India, New Delhi and was inaugurated by Dr. K Vijayraghavan, secretary of the department of Biotechnology, India and Dr. IC Verma, a thought leader in Medical Genetics in India, on feb 18, 2014. Key opinion leaders and patient advocacy groups participated on the occasion.
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
