PODCAST EPISODE The Lead: A cause to help children affected by rare diseases DH Radio

In this episode of the Lead, Prasanna Shirol from the Lysosomal Storage Disorder Support Society India talks about helping those affected by rare diseases. Ahmed Shariff: Hi and welcome to another episode of the Lead by DH Radio. Today we are joined by Mr Prasanna Shirol,

who has co-founded and presided over the first national parents’ support group for children with ultra-rare diseases, with the goal of raising awareness and shared resources. Hi sir and welcome to DH Radio. Prasanna Shirol: Thanks for having me. Ahmed: How do you deal with these rare diseases, because a lot of research has to be done to know their causes and how to be treated. How do you deal with people affected by these rare diseases? Prasanna: There are 7,000 rare diseases in the world. The major challenge is in diagnosing them. The average diagnosing period is 7 years worldwide even today… To know more about the conversation listen to the podcast. Download the Deccan Herald app for iOS devices here: https://apple.co/30eOFD6 For latest news and updates, log on to www.deccanherald.com Check out our e-paper www.deccanheraldepaper.com