Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, today announced the 2018 edition of Race for 7. Race for 7 is a 7000 meter walk/run to raise awareness for the 7000 documented rare diseases. What started as an awareness walk in 2016 to commemorate World Rare Disease Day in February has now grown into a significant campaign, conducted simultaneously in three cities and two countries – Bangalore, Mumbai and Washington DC. This year the walk will be conducted on Sunday, the 25th of February.
Said Prasanna Shirol, Founder Director, ORDI, and father of a rare disease patient, “It is estimated that 70 million patients in India suffer from a rare disease, an alarming statistic of 1 in every 20 Indians. These diseases are serious, often life-threatening, and approximately half of those affected are children. That is why Race for 7 is significant. Through this event, we aim to create greater awareness about the many challenges faced by patients living with rare diseases and their caregivers. The larger public needs to know that the rare disease community is not as rare as the name suggests and that they need our support and encouragement.”
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