Our team from the India, Middle East, Turkey, and Africa region recently organized a rare disease summit, bringing together healthcare professionals, patient organization representatives, and policy makers. Our objective was to redefine the significance of rare diseases and cultivate partnerships with patient organizations to address the challenges of the people living with these debilitating conditions. We strongly believe that collaborations with patient organizations are instrumental in driving research breakthroughs and healthcare innovations. Together, we are dedicated to improving the lives of people living with rare diseases and fostering a healthier community.