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+91 8892 555 000
Email : contactus@ordindia.in

Pierre Robin Awareness Day

5th September is Pierre Robin Awareness Day. You may or may not have heard of it; the disease is uncommon. Let’s join hands and send them some love

We appreciate the kind assistance of Ms. Shreya Saraiya, MSc.Genetic Counseling, KMC, Manipal.

Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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