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Transverse Myelitis Awareness Day

Transverse myelitis is a rare disease that causes inflammation on both sides of one section of the spinal cord; often damages the insulating material covering nerve cell fibers (myelin). 
 
The exact incidence and prevalence of acute transverse myelitis in India, particularly in North India, is not known. 
June 9th being International Transverse Myelitis Awareness Day, Let’s come together and join hands to raise awareness. 
 
We acknowledge the kind assistance of Ms. Sailakshmi Iyer, MSc. BMG, VIT, Vellore for the Tranverse Myelitis Poster. 
Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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